SEAD Virtual Archive: Building a Federation of Institutional Repositories for Long Term Data Preservation

Major research universities are grappling with their response to the deluge of scientific data emerging through research by their faculty. Many are looking to their libraries and the institutional repository as a solution. Scientific data introduces substantial challenges that the document-based institutional repository may not be suited to deal with. The Sustainable Environment - Actionable Data (SEAD) Virtual Archive specifically addresses the challenges of “long tail” scientific data. In this paper, we propose requirements, policy and architecture to support not only the preservation of scientific data today using institutional repositories, but also its rich access and use into the future

SEAD Virtual Archive: Building a Federation of Institutional Repositories for Long-Term Data Preservation in Sustainability Science

Major research universities are grappling with their response to the deluge of scientific data emerging through research by their faculty. Many are looking to their libraries and the institutional repositories for a solution. Scientific data introduces substantial challenges that the document-based institutional repository may not be suited to deal with. The Sustainable Environment - Actionable Data (SEAD) Virtual Archive (VA) specifically addresses the challenges of ‘long tail’ scientific data. In this paper, we propose requirements, policy and architecture to support not only the preservation of scientific data today using institutional repositories, but also rich access to data and their use into the future

Governor’s Task Force on the Planning and Development of Marine Aquaculture in Maine - Executive Summary of Final Report

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The Application of Archival Concepts to a Data-Intensive Environment: Working with Scientists to Understand Data Management and Preservation Needs

The collection, organization, and long-term preservation of resources are the raison d’être of archives and archivists. The archival community, however, has largely neglected science data, assuming they were outside the bounds of their professional concerns. Scientists, on the other hand, increasingly recognize that they lack the skills and expertise needed to meet the demands being placed on them with regard to data curation and are seeking the help of “data archivists” and “data curators.” This represents a significant opportunity for archivists and archival scholars but one that can only be realized if they better understand the scientific context.National Science Foundation under Grant No. 0724300Peer Reviewedhttp://deepblue.lib.umich.edu/bitstream/2027.42/86738/1/Akmonetal2011.pd

Effects of antiplatelet therapy on stroke risk by brain imaging features of intracerebral haemorrhage and cerebral small vessel diseases: subgroup analyses of the RESTART randomised, open-label trial

Background Findings from the RESTART trial suggest that starting antiplatelet therapy might reduce the risk of recurrent symptomatic intracerebral haemorrhage compared with avoiding antiplatelet therapy. Brain imaging features of intracerebral haemorrhage and cerebral small vessel diseases (such as cerebral microbleeds) are associated with greater risks of recurrent intracerebral haemorrhage. We did subgroup analyses of the RESTART trial to explore whether these brain imaging features modify the effects of antiplatelet therapy

The feasibility of a strategy for the remote recruitment, consenting and assessment of recent referrals: a protocol for phase 1 of the On-Line Parent Training for the Initial Management of ADHD referrals (OPTIMA)

Background: In the UK, children with high levels of hyperactivity, impulsivity and inattention referred to clinical services with possible attention-deficit/hyperactivity disorder (ADHD) often wait a long time for specialist diagnostic assessment. Parent training (PT) has the potential to support parents during this difficult period, especially regarding the management of challenging and disruptive behaviours that often accompany ADHD. However, traditional face-to-face PT is costly and difficult to organise in a timely way. We have created a low-cost, easily accessible PT programme delivered via a phone app, Structured E-Parenting Support (STEPS), to address this problem. The overall OPTIMA programme will evaluate the efficacy and cost-effectiveness of STEPS as a way of helping parents manage their children behaviour while on the waitlist. To ensure the timely and efficient evaluation of STEPS in OPTIMA, we have worked with children’s health services to implement a remote strategy for recruitment, screening and assessment of recently referred families. Part of this strategy is incorporated into routine clinical practice and part is OPTIMA specific. Here, we present the protocol for Phase 1 of OPTIMA—a study of the feasibility of this remote strategy, as a basis for a large-scale STEPS randomised controlled trial (RCT). Methods: This is a single arm observational feasibility study. Participants will be parents of up to 100 children aged 5-11 years with high levels of hyperactivity/impulsivity, inattention and challenging behaviour who are waiting for assessment in one of five UK child and adolescent mental health or behavioural services. Recruitment, consenting and data collection will occur remotely. The primary outcome will be the rate at which the families, who meet inclusion criteria, agree in principle to take part in a full STEPS RCT. Secondary outcomes include acceptability of remote consenting and online data collection procedures; the feasibility of collecting teacher data remotely within the required timeframe, and technical difficulties with completing online questionnaires. All parents in the study will receive access to STEPS. Discussion: Establishing the feasibility of our remote recruitment, consenting and assessment strategy is a pre-requisite for the full trial of OPTIMA. It can also provide a model for future trials conducted remotely

Archives, Memory, and Interfaces with the Past

Archival interfaces are criticalnodes in archival systems where archivistsnegotiate and exercise power over theconstitution and representation of archives. Drawing on notions of interfaces from physical,technological, and computer systems, archivalinterfaces are both a metaphor for archivists'roles as intermediaries between documentaryevidence and its readers and a tangible set ofstructures and tools that place archivaldocuments in a context and provide aninterpretative framework. Interfaces in moderninstitutions and technological systems areneither natural nor neutral. In probingarchival interfaces, what may appear as neutraland objective processes are revealed as placeswhere archivists determine what constituteslegitimate evidence of the past and shapesocial memories. The emergence of computerinterfaces as an increasingly common mode ofuser interaction with archives demands thatarchivists confront the interpretative natureof their work and exploit opportunities toplace themselves visibly in the interfaces theyconstruct.Peer Reviewedhttp://deepblue.lib.umich.edu/bitstream/2027.42/41817/1/10502_2004_Article_5096450.pd

Digital Data Curation - Workforce demand and educational needs for data curators

This paper is no longer available at the original handle: http://93.63.166.138:8080/dspace/handle/2012/98As data increases in volume, complexity and value, there is a growing recognition of the need for digital data curation. The demand for data curation is not limited to libraries, archives, museums and other cultural institutions. Government agencies, universities, scientific enterprises, and data-intensive private sector companies increasingly need enhanced capabilities to improve data quality, protect data from various threats, and to exploit data assets to their fullest. Digital curation is both a promising career track for information professionals and a skill needed by everyone who has responsibility for data-intensive work.Peer Reviewedhttp://deepblue.lib.umich.edu/bitstream/2027.42/135735/1/CulturalHeritageOnLine_Florence.pdf56-1Description of CulturalHeritageOnLine_Florence.pdf : single articl